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19th Annual Sam's Night Event Raises Nearly $1.5 Million for Duchenne Muscular Dystrophy Research

19th Annual Sam's Night Event Raises Nearly $1.5 Million for Duchenne Muscular Dystrophy Research

第19届山姆之夜活动为杜甫肌肉营养不良症研究筹集了近150万美元
PR Newswire ·  10/23 14:46

DALLAS, Oct. 23, 2024 /PRNewswire/ -- The Killian family, of Rockwall, are celebrating a record-breaking fundraising milestone with their annual Sam's Night event, to benefit Parent Project Muscular Dystrophy (PPMD). The 19th annual fundraiser, held on Thursday, October 17, 2024, raised an impressive sum of nearly $1.5 million. This fundraising success broke their previous record from last year's event when they raised $1.4 million. Thanks to its generous supporters, Sam's Night has raised $7.5 million since its inception in 2005.

达拉斯,2024年10月23日/美通社/--洛克沃尔的基利安家族正在为他们的年度"Sam's Night"活动庆祝创纪录的筹款里程碑。 Sam's Night活动,以支持肌肉营养不良家长项目(PPMD)。第19届年度筹款活动于2024年10月17日星期四举办,募集了将近150万美元的惊人款项。这次筹款成功打破了他们去年活动时筹集的140万美元的上一记录。由于慷慨的支持者,自2005年创立以来,Sam's Night已经筹集了750万美元。

Sam's Night (originally known as Sam's Family Fun Day) was started by the Killian family after their son Sam was diagnosed with Duchenne muscular dystrophy (Duchenne). Duchenne is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 5,000 live male births.

Sam's Night活动(最初被称为Sam's Family Fun Day)是基利安家族在他们的儿子Sam被诊断患有杜欣氏肌营养不良(Duchenne)后发起的。杜欣氏肌营养不良是一种常见的儿童致命遗传疾病,影响着大约每5000个活男性出生中的一个。

"We continue to be amazed by the support Sam's Night has received over the years," said Sam's mother, Stefanie Killian. "Sam's Family Fun Day was created 19 years ago to raise awareness and funds to support PPMD's mission while honoring Sam and letting us have some fun with Sam, his friends, and their families. It has become such a cherished and enduring event that has grown beyond what we ever dreamed, and Sam's Night's success would not be possible without the support of our incredible family, friends, and community."

"多年来,我们对Sam's Night所受到的支持感到惊讶,"Sam的母亲斯蒂芬妮·基利安说。"19年前创办的Sam's Family Fun Day旨在增加人们对PPMD使命的认识,并以支持PPMD的使命为目的,同时向Sam,他的朋友和家人提供一些乐趣。它已经成为一个如此珍贵和持久的活动,超越了我们曾经梦想的范围,Sam's Night的成功离不开我们令人难以置信的家人,朋友和社区的支持。"

"Sam and the entire Killian family have been beloved members of the PPMD community for years, and their support and dedication to the organization's mission has been integral to our success," said Nicole Herring, PPMD's Vice President of Engagement. "We are incredibly grateful for their energy and passion, as well as their selflessness in providing mentorship, comfort, and support to countless families in the community."

"多年来,Sam和整个基利安家族一直是PPMD社区的受爱戴成员,他们对该组织使命的支持和奉献对我们的成功至关重要,"PPMD的参与副总裁尼科尔·赫林说。"我们对他们的精力和激情,以及他们提供导师,安慰和支持给众多家庭的无私行为深表感激。"

Sponsors of Sam's Night include Altus Group Ltd., CBRE, Chicago Title, Clarion Partners, Colliers International, Cushman Wakefield, Ernst & Young, Elkins Kalt, Hillwood Investment Properties, JLL, KBC Advisors, MRP Industrial, PricewaterhouseCoopers, REDA, Stream Realty, Trammell Crow Company, UPS, Vinson & Elkins, Wells Fargo, and Willmeng Construction.

Sam's Night的赞助商包括Altus Group Ltd.,CBRE,Chicago Title,Clarion Partners,Colliers International,Cushman Wakefield,Ernst & Young,Elkins Kalt,Hillwood Investment Properties,JLL,KBC Advisors,MRP Industrial,PricewaterhouseCoopers,REDA,Stream Realty,Trammell Crow Company,UPS,Vinson & Elkins,富国银行,以及Willmeng Construction。

There's still time to contribute by visiting SamsNight.org. To learn more about Parent Project Muscular Dystrophy, visit .

现在还有时间通过访问来做出贡献 SamsNight.org。要了解更多关于Parent Project Muscular Dystrophy,请访问 .

About Parent Project Muscular Dystrophy

关于Parent Project Muscular Dystrophy

Duchenne is a genetic disorder that slowly robs people of their muscle strength. Parent Project Muscular Dystrophy (PPMD) fights every single battle necessary to end Duchenne.

杜欣氏肌肉萎缩症是一种逐渐削弱人们肌肉力量的遗传疾病。 家长计划肌肉萎缩症(PPMD)为结束杜欣氏肌肉萎缩症所需的每一次战斗而奋斗。

We demand optimal care standards and ensure every family has access to expert healthcare providers, cutting edge treatments, and a community of support. We invest deeply in treatments for this generation of Duchenne patients and in research that will benefit future generations. Our advocacy efforts have secured hundreds of millions of dollars in funding and won eight FDA approvals.

我们要求最佳护理标准,确保每个家庭都能接受专业医疗保健提供者、尖端治疗和支持团体。我们深入投资于这一代杜欣氏肌肉萎缩症患者的治疗以及受益于未来患者的研究。我们的倡导工作已经获得了数亿美元的资金和八个FDA批准。

Everything we do—and everything we have done since our founding in 1994—helps those with Duchenne live longer, stronger lives. We will not rest until we end Duchenne for every single person affected by the disease. Join our fight against Duchenne at EndDuchenne.org. Follow PPMD on Facebook,Twitter,Instagram, and YouTube.

我们所做的一切——自1994年成立以来所做的一切——都是为了帮助那些患有杜欣氏肌肉萎缩症的人活得更长、更强壮。我们将不会停歇,直到结束每一个受该病影响的人身上的杜欣氏肌肉萎缩症的威胁。加入我们的结束杜欣氏肌肉萎缩症的战斗,访问EndDuchenne.org。关注PPMD。EndDuchenne.org。关注PPMD。家长计划肌肉萎缩症(PPMD)的消息来源Facebook,推特,InstagramYouTube.

SOURCE Parent Project Muscular Dystrophy (PPMD)

来源:家长计划肌肉萎缩症(PPMD)

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