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Lennox-Gastaut Syndrome (LGS) Foundation 9th International Conference Focuses on Empowering Families and Transforming the Future

Lennox-Gastaut Syndrome (LGS) Foundation 9th International Conference Focuses on Empowering Families and Transforming the Future

Lennox-Gastaut綜合症(LGS)基金會第9屆國際會議側重於賦予家庭權力和改變未來
PR Newswire ·  07/08 08:27

SAN DIEGO, July 8, 2024 /PRNewswire/ -- On July 12, 2024, the LGS Foundation will kick off its 9th International Family & Professional Conference in Phoenix, Arizona. The highly anticipated, 3-day hybrid conference unites global leaders, healthcare professionals, family leaders, and advocates in the fight against Lennox-Gastaut Syndrome (LGS). This groundbreaking event will be a nexus for cutting-edge research, innovative therapies, and community support initiatives.

2024年7月8日,聖地亞哥 / PRNewswire——在2024年7月12日,LGS基金會將啓動其第九屆國際家庭與專業人士會議在亞利桑那州鳳凰城舉行。這個備受矚目的,爲期3天的混合會議將匯聚全球領袖、醫療保健專業人士、家庭領袖和倡導者,共同抗擊Lennox-Gastaut綜合症(LGS)。這場開創性的活動將成爲前沿研究、創新療法和社區支持倡議的中心。LGS是一種罕見且嚴重的癲癇病,對全球患者和看護人員提出了複雜的挑戰。然而,通過協作努力,治療和護理的框架正在迅速發展。該會議是加速進展並推動切實變革的平台。

LGS, a rare and severe form of epilepsy, presents complex challenges for patients and caregivers worldwide. However, through collaborative efforts, the landscape of treatment and care is rapidly evolving. The conference serves as a platform to accelerate progress and drive tangible change.

參加者可以期待一個多樣化的計劃,包括主題演講、專題討論、互動研討會和海報展覽。著名專家將分享LGS 最新研究進展,涵蓋遺傳學、神經學、藥理學和全面護理方法。此外,會議還將聚焦患者的故事,促進與會者之間的同情和理解。

Participants can expect a diverse program featuring keynote presentations, panel discussions, interactive workshops, and poster sessions. Renowned experts will share the latest advancements in LGS research, spanning genetics, neurology, pharmacology, and holistic care approaches. Moreover, the conference will spotlight patient stories, fostering empathy and understanding among attendees.

“建立聯繫,特別是面對面,對我們的旅程非常重要。這確實使我們知道我們不是孤獨的。”-Lesa McLeod,LGS看護者

"Making connections, especially in person, is so important for our journey. It really does make it a little easier knowing we aren't alone." - Lesa McLeod, LGS Caregiver

“在我們的旅程中建立聯繫,特別是當面建立聯繫,對我們非常重要。因爲我們知道我們並不孤單。”-Lesa McLeod,LGS護理者

Key themes of this years conference include:

本屆會議的關鍵主題包括:

  1. Innovative Therapies: Exploring novel treatment modalities and pharmaceutical developments to enhance seizure management and quality of life.
  2. Multidisciplinary Care: Emphasizing the importance of collaborative care models.
  3. Community Empowerment: Amplifying the voices of patients, caregivers, and advocates to drive policy change, increase awareness, and reduce stigma.
  1. 創新療法:探索新型治療模式和藥品進展,提高癲癇管理和生活質量。
  2. 多學科護理:強調協作護理模式的重要性。
  3. 社區賦權:放大患者、護理人員和倡導者的聲音,推動政策變革,增加認識,減少社會歧視。

"The LGS Foundation's Family & Professional Conference is truly a highlight for those impacted by LGS," said Karen Groff, President of the Board of Directors at the LGS Foundation and mom to a son with LGS. "We learn about scientific updates, treatment options, and available programs and resources. We laugh. We cry. We have fun. Most importantly connections are made with other caregivers who understand this difficult journey. We become a community of advocacy, hope, and support that will one day find the cures for LGS."

“LGS基金會的家庭與專業人士會議真的是對LGS感到影響的人們的一個亮點,”LGS基金會董事會主席兼LGS患者母親Karen Groff表示。 “我們了解有關科學更新、治療選擇和可用計劃和資源的信息。我們笑。我們哭。我們玩得開心。最重要的是,我們與其他了解這段艱難旅程的護理人員建立了聯繫。我們成爲一個倡導、希望和支持的社區,有一天將找到LGS的治癒方法。”

"Attending the LGS conference is good for the mind, body, spirit and soul." - Keshia Crum

“參加LGS會議有益於心靈、身體、精神和靈魂。”Keshia Crum說。

For more information, visit the LGS Foundation's website.

更多信息請參閱訪問LGS基金會的網站。.

About the LGS Foundation
The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS. It educates the public about LGS, supports families living with the condition, and drives research to find the cures.

關於LGS基金會。
Lennox-Gastaut綜合症(LGS)基金會是致力於改善LGS患者生活的非營利組織。它向公衆宣傳LGS,支持患有該病的家庭,並推動研究以找到治癒方法。

SOURCE Lennox-Gastaut Syndrome (LGS) Foundation

來源於Lennox-Gastaut綜合症(LGS)基金會。

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