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CurePSP Announces Growth of Care Network for Progressive Supranuclear Palsy and Related Diseases

CurePSP Announces Growth of Care Network for Progressive Supranuclear Palsy and Related Diseases

CurePSP宣佈擴大漸進性核上性麻痹和相關疾病護理網絡
PR Newswire ·  08/22 09:00

NEW YORK, Aug. 22, 2024 /PRNewswire/ -- CurePSP has designated Barrow Neurological Institute, Cedars-Sinai Medical Center, the University of British Columbia and the University of Alberta as CurePSP Centers of Care, bringing the network to 36 distinguished medical institutions across the United States and Canada.

CurePSP已將巴羅神經研究所、西達-西奈醫療中心、英屬哥倫比亞大學和阿爾伯塔大學指定爲CurePSP照護中心,將該網絡擴展到了美國和加拿大的36家著名醫療機構。

CurePSP's foundational program was established in 2017 to improve early diagnosis, symptom management and tailored resources for people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) or multiple system atrophy (MSA). Centers must demonstrate comprehensive care, close collaboration with other CurePSP centers and the organization, community outreach, professional education and a commitment to research for these rare, quickly progressive neurodegenerative diseases.

CurePSP的基礎計劃成立於2017年,旨在改善早期診斷、症狀管理和爲進行性核上性麻痹症(PSP)、皮質基底節變性(CBD)或多系統萎縮(MSA)的患者提供量身定製的資源。這些中心必須展示全面的護理、與其他CurePSP中心和組織的密切合作、社區外展、職業教育以及爲這些罕見且快速進展的神經退行性疾病進行研究的承諾。

"We are excited for the four new centers to contribute their distinctive perspectives, strengths and approaches to the program," said Jessica Shurer, director of clinical affairs and advocacy at CurePSP. "These additional centers will add to our capacity to advance thought leadership, public awareness and best practices for care delivery for PSP, CBD and MSA."

CurePSP的臨床事務和倡導主管Jessica Shurer表示:"我們很高興這四個新中心能夠爲該計劃做出獨特的觀點、優勢和方法的貢獻。" "這些額外的中心將增加我們推動思想領導力、公衆意識和PSP、CBD和MSA護理交付最佳實踐的能力。"

The organization is continually working to understand and address barriers to accessing care and research often faced by this disease community. The 2024 network expansion doubled the number of CurePSP centers in Canada, responding to a previously identified need for more support on the country's west coast.

該組織不斷努力了解並解決這些疾病社區通常面臨的護理和研究障礙。2024年的網絡擴展使CurePSP在加拿大的中心數量翻了一番,在這個國家的西海岸獲得更多支持。

"People with PSP, CBD and MSA are often marginalized and struggle to find specialized care, and our center's neuropalliative care services help with this navigation" said Dr. Janis Miyasaki, co-director at the University of Alberta. "Joining the CurePSP Centers of Care is an incredible honor for our team."

阿爾伯塔大學的合作主任詹尼斯·宮崎博士表示:"罹患PSP、CBD和MSA的人經常被邊緣化,並且很難找到專門的護理,我們中心的神經姑息護理服務有助於解決這個問題。" "加入CurePSP照護中心對我們的團隊來說是一種難以置信的榮譽。"

Centers must reapply every three years. For more information and a complete listing of CurePSP Centers of Care, visit

中心每三年必須重新申請。獲取更多信息和完整的CurePSP照護中心列表,請訪問

About CurePSP:

關於CurePSP:

CurePSP is the leading nonprofit organization dedicated to the awareness, care and cure for three neurodegenerative diseases: progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA). As a catalyst for new treatments and a cure, CurePSP establishes important partnerships and funds critical research internationally. Through its advocacy and support efforts, CurePSP enhances education, care delivery and quality of life for people living with PSP, CBD and MSA and their families. Science, community and hope are at the heart of CurePSP's mission and all its services. CurePSP is a registered 501(c)(3) charity within the United States (EIN: 52-1704978).

CurePSP是致力於對三種神經退行性疾病:進行性核上性麻痹症(PSP)、皮質基底節變性(CBD)和多系統萎縮(MSA)進行宣傳、護理和治癒的領先非營利組織。作爲新療法和治癒的催化劑,CurePSP在國際上建立重要的夥伴關係並提供重要的資金支持。通過倡導和支持工作,CurePSP增強了PSP、CBD和MSA患者及其家人的教育、護理交付和生活質量。科學、社區和希望是CurePSP使命的核心,也是其所有服務的核心。CurePSP是美國註冊的501(c)(3)慈善組織(EIN號:52-1704978)。

Contact:
Kristophe Diaz, PhD
Executive Director and Chief Science Officer
646-725-1453
[email protected]

聯繫方式:
Kristophe Diaz,博士
執行董事兼首席科學官
646-725-1453
[email protected]

SOURCE CurePSP, Inc.

資料來源:CurePSP, Inc.

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