share_log

Lennox-Gastaut Syndrome (LGS) Foundation 9th International Conference Focuses on Empowering Families and Transforming the Future

Lennox-Gastaut Syndrome (LGS) Foundation 9th International Conference Focuses on Empowering Families and Transforming the Future

Lennox-Gastaut综合症(LGS)基金会第9届国际会议侧重于赋予家庭权力和改变未来
PR Newswire ·  07/08 08:27

SAN DIEGO, July 8, 2024 /PRNewswire/ -- On July 12, 2024, the LGS Foundation will kick off its 9th International Family & Professional Conference in Phoenix, Arizona. The highly anticipated, 3-day hybrid conference unites global leaders, healthcare professionals, family leaders, and advocates in the fight against Lennox-Gastaut Syndrome (LGS). This groundbreaking event will be a nexus for cutting-edge research, innovative therapies, and community support initiatives.

2024年7月8日,圣地亚哥 / PRNewswire——在2024年7月12日,LGS基金会将启动其第九届国际家庭与专业人士会议在亚利桑那州凤凰城举行。这个备受瞩目的,为期3天的混合会议将汇聚全球领袖、医疗保健专业人士、家庭领袖和倡导者,共同抗击Lennox-Gastaut综合症(LGS)。这场开创性的活动将成为前沿研究、创新疗法和社区支持倡议的中心。LGS是一种罕见且严重的癫痫病,对全球患者和看护人员提出了复杂的挑战。然而,通过协作努力,治疗和护理的框架正在迅速发展。该会议是加速进展并推动切实变革的平台。

LGS, a rare and severe form of epilepsy, presents complex challenges for patients and caregivers worldwide. However, through collaborative efforts, the landscape of treatment and care is rapidly evolving. The conference serves as a platform to accelerate progress and drive tangible change.

参加者可以期待一个多样化的计划,包括主题演讲、专题讨论、互动研讨会和海报展览。著名专家将分享LGS 最新研究进展,涵盖遗传学、神经学、药理学和全面护理方法。此外,会议还将聚焦患者的故事,促进与会者之间的同情和理解。

Participants can expect a diverse program featuring keynote presentations, panel discussions, interactive workshops, and poster sessions. Renowned experts will share the latest advancements in LGS research, spanning genetics, neurology, pharmacology, and holistic care approaches. Moreover, the conference will spotlight patient stories, fostering empathy and understanding among attendees.

“建立联系,特别是面对面,对我们的旅程非常重要。这确实使我们知道我们不是孤独的。”-Lesa McLeod,LGS看护者

"Making connections, especially in person, is so important for our journey. It really does make it a little easier knowing we aren't alone." - Lesa McLeod, LGS Caregiver

“在我们的旅程中建立联系,特别是当面建立联系,对我们非常重要。因为我们知道我们并不孤单。”-Lesa McLeod,LGS护理者

Key themes of this years conference include:

本届会议的关键主题包括:

  1. Innovative Therapies: Exploring novel treatment modalities and pharmaceutical developments to enhance seizure management and quality of life.
  2. Multidisciplinary Care: Emphasizing the importance of collaborative care models.
  3. Community Empowerment: Amplifying the voices of patients, caregivers, and advocates to drive policy change, increase awareness, and reduce stigma.
  1. 创新疗法:探索新型治疗模式和药品进展,提高癫痫管理和生活质量。
  2. 多学科护理:强调协作护理模式的重要性。
  3. 社区赋权:放大患者、护理人员和倡导者的声音,推动政策变革,增加认识,减少社会歧视。

"The LGS Foundation's Family & Professional Conference is truly a highlight for those impacted by LGS," said Karen Groff, President of the Board of Directors at the LGS Foundation and mom to a son with LGS. "We learn about scientific updates, treatment options, and available programs and resources. We laugh. We cry. We have fun. Most importantly connections are made with other caregivers who understand this difficult journey. We become a community of advocacy, hope, and support that will one day find the cures for LGS."

“LGS基金会的家庭与专业人士会议真的是对LGS感到影响的人们的一个亮点,”LGS基金会董事会主席兼LGS患者母亲Karen Groff表示。 “我们了解有关科学更新、治疗选择和可用计划和资源的信息。我们笑。我们哭。我们玩得开心。最重要的是,我们与其他了解这段艰难旅程的护理人员建立了联系。我们成为一个倡导、希望和支持的社区,有一天将找到LGS的治愈方法。”

"Attending the LGS conference is good for the mind, body, spirit and soul." - Keshia Crum

“参加LGS会议有益于心灵、身体、精神和灵魂。”Keshia Crum说。

For more information, visit the LGS Foundation's website.

更多信息请参阅访问LGS基金会的网站。.

About the LGS Foundation
The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS. It educates the public about LGS, supports families living with the condition, and drives research to find the cures.

关于LGS基金会。
Lennox-Gastaut综合症(LGS)基金会是致力于改善LGS患者生活的非营利组织。它向公众宣传LGS,支持患有该病的家庭,并推动研究以找到治愈方法。

SOURCE Lennox-Gastaut Syndrome (LGS) Foundation

来源于Lennox-Gastaut综合症(LGS)基金会。

声明:本内容仅用作提供资讯及教育之目的,不构成对任何特定投资或投资策略的推荐或认可。 更多信息
    抢沙发